Bibliography

Kolaitis NA, Singer JP, Bartolome S, Chakinala MM, Grinnan D, Hemnes AR, Heresi GA, Leary PJ, Shlobin OA, Ventetuolo CE, et al. The landscape of referrals for lung transplantation in pulmonary arterial hypertension: a report from the Pulmonary Hypertension Association Registry. The Journal of Heart and Lung Transplantation [Internet]. 2025 . Available from: https://www.sciencedirect.com/science/article/pii/S1053249825020558

Robbins EW, Bradley K, Badesch DB, Burger C, Chybowski AM, De Marco T, Hemnes AR, Lammi M, Mathai SC, Melendres-Groves L, et al. Medication Non-Adherence in Patients with Pulmonary Arterial Hypertension: The Pulmonary Hypertension Association Registry (PHAR). Ann Am Thorac Soc. 2025 .

DesJardin JT, Kime N, Kolaitis NA, Kronmal RA, Lammi MR, Mathai SC, Ventetuolo CE, De Marco T. Investigating the "sex paradox" in pulmonary arterial hypertension: Results from the Pulmonary Hypertension Association Registry (PHAR). J Heart Lung Transplant. 2024 ;43(6):901-910.

Mayer M, Badesch DB, Nielsen KH, Kawut S, Bull T, Ryan JJ, Sager J, Mazimba S, Hemnes A, Klinger J, et al. Impact of the COVID‐19 pandemic on chronic disease management and patient reported outcomes in patients with pulmonary hypertension: The Pulmonary Hypertension Association Registry. Pulmonary Circulation [Internet]. 2023 ;13(2). Available from: https://onlinelibrary.wiley.com/toc/20458940/13/2https://onlinelibrary.wiley.com/doi/10.1002/pul2.12233https://onlinelibrary.wiley.com/doi/pdf/10.1002/pul2.12233

Rohlfing AB, Bischoff KE, Kolaitis NA, Kronmal RA, Kime NA, Gray MP, Bartolome S, Chakinala MM, Frantz RP, Ventetuolo CE, et al. Palliative care referrals in patients with pulmonary arterial hypertension: The Pulmonary Hypertension Association Registry. Respir Med. 2023 ;206:107066.

Fling C, De Marco T, Kime NA, Lammi MR, Oppegard LJ, Ryan JJ, Ventetuolo CE, R White J, Zamanian RT, Leary P. Regional variation in pulmonary arterial hypertension in the United States: The PHA Registry. Annals of ATS. 2023 .

Garry JD, Kolaitis NA, Kronmal R, Thenappan T, Hemnes A, Grinnan D, Bull T, Chakinala MM, Horn E, Simon MA, et al. Anticoagulation in pulmonary arterial hypertension - association with mortality, healthcare utilization, and quality of life: The Pulmonary Hypertension Association Registry (PHAR). J Heart Lung Transplant. 2022 ;41(12):1808-1818.

Bernardo RJ, Lu D, Ramirez RL, Hedlin H, Kawut SM, Bull T, De Marco T, H Ford J, Grinnan D, Klinger JR, et al. Hispanic Ethnicity and Social Determinants of Health in Pulmonary Arterial Hypertension: The Pulmonary Hypertension Association Registry. Ann Am Thorac Soc. 2022 .

Kolaitis NA, Lammi M, Mazimba S, Feldman J, McConnell W, Sager JS, Raval AA, Simon MA, De Marco T. Human Immune Deficiency Virus-Associated Pulmonary Arterial Hypertension: A Report from the Pulmonary Hypertension Association Registry. Am J Respir Crit Care Med. 2022 .

Chang KY, Duval S, Badesch DB, Bull TM, Chakinala MM, De Marco T, Frantz RP, Hemnes A, Mathai SC, Rosenzweig EBerman, et al. Mortality in Pulmonary Arterial Hypertension in the Modern Era: Early Insights From the Pulmonary Hypertension Association Registry. J Am Heart Assoc. 2022 ;11(9):e024969.

DuBrock HM, Burger CD, Bartolome SD, Feldman JP, D Ivy D, Rosenzweig EB, Sager JS, Presberg KW, Mathai SC, Lammi MR, et al. Health disparities and treatment approaches in portopulmonary hypertension and idiopathic pulmonary arterial hypertension: an analysis of the Pulmonary Hypertension Association Registry. Pulm Circ. 2021 ;11(3):20458940211020913.

DesJardin JT, Kolaitis NA, Kime N, Kronmal RA, Benza RL, Elwing JM, Lammi MR, McConnell JW, Presberg KW, Sager JS, et al. Age-related differences in hemodynamics and functional status in pulmonary arterial hypertension: Baseline results from the Pulmonary Hypertension Association Registry. J Heart Lung Transplant. 2020 ;39(9):945-953.

Kolaitis NA, Zamanian RT, Perez VA de Jesus, Badesch DB, Benza RL, Burger CD, Chakinala MM, Elwing JM, Feldman J, Lammi MR, et al. Clinical Differences and Outcomes between Methamphetamine-Associated and Idiopathic Pulmonary Arterial Hypertension in the PHAR. Ann Am Thorac Soc. 2020 .

Min J, Feng R, Badesch D, Berman-Rosenzweig E, Burger C, Chakinala M, De Marco T, Feldman J, Hemnes A, Horn EM, et al. Obesity in Pulmonary Arterial Hypertension (PAH): The Pulmonary Hypertension Association Registry (PHAR). Ann Am Thorac Soc. 2020 .

Fakhri S, Hannon K, Moulden K, Peterson R, Hountras P, Bull T, Maloney J, De Marco T, Ivy D, Thenappan T, et al. Residence at moderately high altitude and its relationship with WHO Group 1 pulmonary arterial hypertension symptom severity and clinical characteristics: the Pulmonary Hypertension Association Registry. Pulm Circ. 2020 ;10(4):2045894020964342.