Bibliography

Borgese M, Badesch D, Bull T, Chakinala M, DeMarco T, Feldman J, H Ford J, Grinnan D, Klinger JR, Bolivar L, et al. EmPHasis-10 as a Measure of Health-Related Quality of Life in Pulmonary Arterial Hypertension: data from PHAR. Eur Respir J. 2020 .

Fakhri S, Hannon K, Moulden K, Peterson R, Hountras P, Bull T, Maloney J, De Marco T, Ivy D, Thenappan T, et al. Residence at moderately high altitude and its relationship with WHO Group 1 pulmonary arterial hypertension symptom severity and clinical characteristics: the Pulmonary Hypertension Association Registry. Pulm Circ. 2020 ;10(4):2045894020964342.

Garry JD, Kolaitis NA, Kronmal R, Thenappan T, Hemnes A, Grinnan D, Bull T, Chakinala MM, Horn E, Simon MA, et al. Anticoagulation in pulmonary arterial hypertension - association with mortality, healthcare utilization, and quality of life: The Pulmonary Hypertension Association Registry (PHAR). J Heart Lung Transplant. 2022 ;41(12):1808-1818.

Bernardo RJ, Lu D, Ramirez RL, Hedlin H, Kawut SM, Bull T, De Marco T, H Ford J, Grinnan D, Klinger JR, et al. Hispanic Ethnicity and Social Determinants of Health in Pulmonary Arterial Hypertension: The Pulmonary Hypertension Association Registry. Ann Am Thorac Soc. 2022 .

Grinnan D, Kang L, DeWilde C, Badesch D, Benza R, Bull T, Chakinala M, DeMarco T, Feldman J, Ford HJ, et al. Prediction of patient outcomes through social determinants of health: The Pulmonary Hypertension Association Registry (PHAR) evaluation. Pulm Circ. 2022 ;12(3):e12120.

Mayer M, Badesch DB, Nielsen KH, Kawut S, Bull T, Ryan JJ, Sager J, Mazimba S, Hemnes A, Klinger J, et al. Impact of the COVID‐19 pandemic on chronic disease management and patient reported outcomes in patients with pulmonary hypertension: The Pulmonary Hypertension Association Registry. Pulmonary Circulation [Internet]. 2023 ;13(2). Available from: https://onlinelibrary.wiley.com/toc/20458940/13/2https://onlinelibrary.wiley.com/doi/10.1002/pul2.12233https://onlinelibrary.wiley.com/doi/pdf/10.1002/pul2.12233